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ever have a complete rollercoaster emotion day?

shirlene29

shirlene29

I am BATMAN!
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wake up...get ready for ultrasound appointment

excited, happy

see ultrasound, tech says...everythings good...go wait for the dr

cheerful...still no definitive gender, frustrated

see dr, who says tech found two possible cranial brain issues
referal to perinatologist, US tech was kind of a jerk at reg dr...maybe she screwed up

Dr maintains good poker face and says probably no big deal (then why send me to the crazy high risk dr for the level 2 ultrasound and possible amnio?)

worried

DR google incites complete panic when I realize that one of these defects if its even there is pretty much proof positive theres spina bifida

furious to realize the other "defect" is a non issue...like at all

find spina bifida group which is very reassuring

spouse buys new laptop somewhere in the mix because I'm beside myself and it hurts to be at the desk top

find radiology study that points out in absence of other markers this is probably a misinterprentation of the scan...

kinda pissed


grab scan done three weeks ago and easily find the "missing ventricle"
really angry but relieved

still no answer on the spina bifida marker...no call from perinatologist for when that appointment is




F.M.L,
 
miplank said:
sorry, not laughing at your situation just your reply to jiggagold.
Click to expand...


crazily I gave you the benefit of the doubt before you posted this follow up...proof my brain is fried (more?) by today


and yeah pick...thing is I can't even fault the doctor....I really hate that US tech tho
 
Don't give out hope, I know a man that merely 2 weeks ago was told they were 100% positive he had cancer, and he just went back for a checkup this week and they can't find a trace of it.
 
I haven't...Im actually fairly convinced the tech was wrong

the brain ventricle thing is a non issue ..turns out 20% of the population has a variation of it w/o or with very minor symptoms...and I easily found the ventricles on a slightly older ultrasound..so it was likely transducer "reverb" obscuring it this go around...ironically this worried me far more than the other thing

if the sign was correctly identified then the baby has spina bifida...theres no question..and not the asymptomatic variety
but I found readily available statistics on this being inaccurately identified...so the referral to the peri was appropriate... *sigh*


I was really upset initially and a lot less so now..but man I've wrung out after all that
 
uamaverick said:
Don't give out hope, I know a man that merely 2 weeks ago was told they were 100% positive he had cancer, and he just went back for a checkup this week and they can't find a trace of it.
Click to expand...

same happened at my work


doc tells schmuck he has incurable cancer

schmuck starts giving all his shit away

doc says, we fucked up, you'll be okay

schmuck tries to retrieve his shit
 
Last edited:
lol...mines the opposite..I got...
specialist, theres nothing there, we can't see it on ct scan or ultrasound

me, uhm... its palpable, you can see it with your eyes...
specialist, no its not
my reg dr, uhm, I can palp it and see it too...its really right there...its attached to the thyroid...it moves..and its taking skin with it, theres bad blood work to go with it

exploratory surgery...voila...cancer

sometimes i wonder if medicine is just stabbing around in the dark and guessing
 
I was also told as a kid that I had scoliosis, and I went to a different doctor and he was like WTF no you don't. Doctors are not intelligent people, for the most part.
 
yeah...I agree to a degree...I trust my primary...shes really good shit...and if shes alarmed by something doesnt bs me but she doesnt over-treat either..idk what im getting at

I like her I generally dont like the medical community...ironic really
 
I once misplaced my car keys. Thought they were on teh coffee table but they were really in my room. Boy that was an emotional 30 seconds.
 
yea, Its pretty frigging exhausting. TBO, i usually lock myself somewhere and burst into tears, sometimes i cant control em, and i just need to cry for really no good reason, but i always feel sooooo much better after.
 
agreed ortiz...because it would have to be managed differently if there is a problem

and thank you, I appreciate it
 
I know how you feel Shirlene. The frustration, the anger, the worry.
I hope your baby is born perfect, and it was all just a big mistake.
Just take it one day at a time.
 
nothing yet...I'm feeling relatively calm about it today...found some pretty good info that if the baby has good hip, knee and ankle movement on ultrasound even if it is bifida its likely not very severe. I haven't seen ankle movement that I could pinpoint on ultrasound but hip and knee movement is fine/very good. Still sucks but its manageable.

and I'm ignoring the ventricle thing because I really really think thats a mistake..and even if its not it really is a non issue and not related to anything chromosonal..I'd have to watch for seizures at worst case scenario...and Greg has a seizure disorder anyway, so thats nothing new to me.

the stupid peri's office still hasn't called for the appointment
 
shirlene29 said:
wake up...get ready for ultrasound appointment

excited, happy

see ultrasound, tech says...everythings good...go wait for the dr

cheerful...still no definitive gender, frustrated

see dr, who says tech found two possible cranial brain issues
referal to perinatologist, US tech was kind of a jerk at reg dr...maybe she screwed up

Dr maintains good poker face and says probably no big deal (then why send me to the crazy high risk dr for the level 2 ultrasound and possible amnio?)

worried

DR google incites complete panic when I realize that one of these defects if its even there is pretty much proof positive theres spina bifida

furious to realize the other "defect" is a non issue...like at all

find spina bifida group which is very reassuring

spouse buys new laptop somewhere in the mix because I'm beside myself and it hurts to be at the desk top

find radiology study that points out in absence of other markers this is probably a misinterprentation of the scan...

kinda pissed


grab scan done three weeks ago and easily find the "missing ventricle"
really angry but relieved

still no answer on the spina bifida marker...no call from perinatologist for when that appointment is




F.M.L,
Click to expand...

I know that exact kind of day. Mine didn't have a happy ending so it's a story you don't need to hear it right now.

Call the perinatologist and make a pest of yourself. They should really be more understanding in this circumstance.

Here's hoping everything turns out OK.
 
stay positive shirlz.
i'm sorry about this, but take one day at a time.
i wish you the best.
 
nydj66 said:
I know that exact kind of day. Mine didn't have a happy ending so it's a story you don't need to hear it right now.

Call the perinatologist and make a pest of yourself. They should really be more understanding in this circumstance.

Here's hoping everything turns out OK.
Click to expand...


yeah...my plan for tomorrow is to be a PITA to try and get this appointment sorted out
 
called the ob to ask when they were going to schedule this...they called back an hr later...the maternal fetal medicine place scheduled the appointment for Feb 22nd....unaceptable
called maternal fetal medicine..offered to go to any of their four locations...convenience wasn't a factor...appointment set for Feb 2nd

squeaky wheel gets the grease
 
I'll be thinking about you. Keep us updated..thats Wed right? Hope the week goes by fast so you won't stress too much about it. :hug:
 
the appointment is wednesday morning...so I really only have to drive myself nuts until tuesday night, which I think I can handle and I get an answer on the spot at the appointment..if its still inconclsive I can have the amnio while I'm there...but thats I think a two week turn around time :(
I'm in way better head space about it than I was though and the baby has been kicking like crazy the last couple of days which is somehow encouraging
 
shirlene29 said:
the appointment is wednesday morning...so I really only have to drive myself nuts until tuesday night, which I think I can handle and I get an answer on the spot at the appointment..if its still inconclsive I can have the amnio while I'm there...but thats I think a two week turn around time :(
I'm in way better head space about it than I was though and the baby has been kicking like crazy the last couple of days which is somehow encouraging
Click to expand...
That's good to hear, I hope it turns out okay, keep us posted, some of us genuinely care about you hun :friends:
 
and...the perinatoligist said the US tech at the drs office was a twit......totally normal skull, brain and spine
and definitely a girl

2nty1k3.jpg
 
hahaha...hes gonna have to go ball deep somewhere else then...cuz Im dun

not that hes pry opposed to that
 
I am so glad the baby is completely healthy!!!! :heart: :heart: :heart: congrats on another girl,. you know the drill already so it might be easier :)
 
I'm sorry you had to go through that, I could only imagine the stress level.

Glad to hear she is healthy and congrats on the baby girl :heart:
 
again...thanks...I don't think I've ever been so glad someone was having an off day or was incompetent
:)
 
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