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Well, I'm not on Facebook anyway ...It sucks. I just found out a week ago it was something that wasn't going to stop, and I understand if people aren't rushing to read this thread. It's a depressing topic. I just haven't had the desire to post about it on FB.
I have looked into the Keto diet, as much as I have been able to in the past week. I've been hesitant to put her on the diet, just because it seems so difficult for a little kid to adhere to but I may have to go that route. I wish I knew what started all this.
She fell and hit her head. Supposably, it was a minor bump on the head. She didn't even have a bump from it though. No goose egg or anything. But now the seizures. Now she has this scarring in her temporal lobe. I don't really understand whats happening. Makes me think maybe it wasn't such a minor bump on the head.
Hey Cindy hope she's doing better now. Kid I know use to have seizures and just grew out of it I guess. Keep your head up you guys will figure it out.
why are you always tryin to bang mitchs girl way to be a good bro u scumbag fuk eat a grenade
Well, I'm not on Facebook anyway ...
I don't understand something, where's her pediatrician in all this? Do you have a pediatric neurologist you're working with? With something like this, talking about a child, you need an involved advocate. That might mean you need a different specialist. Unfortunately, sometimes that means going out of network and into your own pocket for decent medical care. It's better to have a doctor you connect with and who actually makes time for you, that you can talk to, than the cheapest one. Most of the time, even if a physician is out of your network, studies can be performed within in-network facilities. That's kind of where I'm at with both my sports medicine guy and chiropractor. No decent pediatric specialist should be blowing you off the way you're describing.
Got a list here, don't know if you've already seen it or not: U.S. News Best Children's Hospitals: Neurology & Neurosurgery
Anyway, if you are used to cooking from scratch the diet isn't as awful as you might think. My husband and I have been following it for nearly a year. Once you get "used" to eating this way (and one thing I do know is that you really need a dietrician and involved physician for the pediatric epilepsy version) the next biggest problem is the real tendency to fall into a food rut. The nutritionist should help with this to a degree. It IS something that needs to be medically supervised though. The diet changes just about everything you can think of metabolically, from how your brain operates to how your body processes water and salt.
Anyway, if the keto diet turns out something you're going to follow this board has an AWESOME recipe forum: Low Carb Friends
However, I would suggest you check this website, as well, if you haven't already. The Charlie Foundation - The Charlie Foundation for Ketogenic Therapies They have a contact page and could possibly be a really good resource for giving you some ideas on how to proceed. It really sounds like you're out in limbo. The best advice always comes from people who have already navigated the maze. Seriously, at least find a support group in your area for parents of epileptic kids, THEY know who the good doctors are! Heck, most of them are as good as a physician when it comes to interpreting labs and studies.
Hey Cindy hope she's doing better now. Kid I know use to have seizures and just grew out of it I guess. Keep your head up you guys will figure it out.