SofaGeorge said:1. Collect all of your medical records and x-rays immediately. You are going to need copies of them when you visit a new physician and you don't want the delays of having individual doctors/hospitals sending them to each other.
2. Find one (1) primary care physician who is a specialist in this type of cancer and work with him to come to understand your options. Don't run from doctor to doctor. Work with one (1) and have HIM set you up for second oppinions if you need them - refering the results of the second oppinions back to him.
3. Be aggresive... there are usually a lot of options for this that you are unaware of... and the first doctor you visit is unaware of.
4. Educate yourself as much as possible... specifically about cancer and this type of cancer.
This is the best advice you can get. Good luck poyeboy, my wife had cancer it was a very tough tiime but she came through it alright. You have to be very agressive with the docs. Get busy!