ever have a complete rollercoaster emotion day?

[cindylou]

Im sorry shirl.....any updates?

 

[shirlene29]

nothing yet...I'm feeling relatively calm about it today...found some pretty good info that if the baby has good hip, knee and ankle movement on ultrasound even if it is bifida its likely not very severe. I haven't seen ankle movement that I could pinpoint on ultrasound but hip and knee movement is fine/very good. Still sucks but its manageable.

and I'm ignoring the ventricle thing because I really really think thats a mistake..and even if its not it really is a non issue and not related to anything chromosonal..I'd have to watch for seizures at worst case scenario...and Greg has a seizure disorder anyway, so thats nothing new to me.

the stupid peri's office still hasn't called for the appointment

 

[nydj66]

wake up...get ready for ultrasound appointment

excited, happy

see ultrasound, tech says...everythings good...go wait for the dr

cheerful...still no definitive gender, frustrated

see dr, who says tech found two possible cranial brain issues
referal to perinatologist, US tech was kind of a jerk at reg dr...maybe she screwed up

Dr maintains good poker face and says probably no big deal (then why send me to the crazy high risk dr for the level 2 ultrasound and possible amnio?)

worried

DR google incites complete panic when I realize that one of these defects if its even there is pretty much proof positive theres spina bifida

furious to realize the other "defect" is a non issue...like at all

find spina bifida group which is very reassuring

spouse buys new laptop somewhere in the mix because I'm beside myself and it hurts to be at the desk top

find radiology study that points out in absence of other markers this is probably a misinterprentation of the scan...

kinda pissed


grab scan done three weeks ago and easily find the "missing ventricle"
really angry but relieved

still no answer on the spina bifida marker...no call from perinatologist for when that appointment is




F.M.L,

I know that exact kind of day. Mine didn't have a happy ending so it's a story you don't need to hear it right now.

Call the perinatologist and make a pest of yourself. They should really be more understanding in this circumstance.

Here's hoping everything turns out OK.

 

[iggy]

stay positive shirlz.
i'm sorry about this, but take one day at a time.
i wish you the best.

 

[nangiggles]

Han in there Shirlene, hopefully it was a misinterpretation of the image in question.

 

[shirlene29]

I know that exact kind of day. Mine didn't have a happy ending so it's a story you don't need to hear it right now.

Call the perinatologist and make a pest of yourself. They should really be more understanding in this circumstance.

Here's hoping everything turns out OK.

yeah...my plan for tomorrow is to be a PITA to try and get this appointment sorted out

 

[shirlene29]

called the ob to ask when they were going to schedule this...they called back an hr later...the maternal fetal medicine place scheduled the appointment for Feb 22nd....unaceptable
called maternal fetal medicine..offered to go to any of their four locations...convenience wasn't a factor...appointment set for Feb 2nd

squeaky wheel gets the grease

 

[cindylou]

I'll be thinking about you. Keep us updated..thats Wed right? Hope the week goes by fast so you won't stress too much about it. :hug:

 

[shirlene29]

the appointment is wednesday morning...so I really only have to drive myself nuts until tuesday night, which I think I can handle and I get an answer on the spot at the appointment..if its still inconclsive I can have the amnio while I'm there...but thats I think a two week turn around time
I'm in way better head space about it than I was though and the baby has been kicking like crazy the last couple of days which is somehow encouraging

 

[nangiggles]

the appointment is wednesday morning...so I really only have to drive myself nuts until tuesday night, which I think I can handle and I get an answer on the spot at the appointment..if its still inconclsive I can have the amnio while I'm there...but thats I think a two week turn around time
I'm in way better head space about it than I was though and the baby has been kicking like crazy the last couple of days which is somehow encouraging

That's good to hear, I hope it turns out okay, keep us posted, some of us genuinely care about you hun