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Anybody have Colitis or Crohn's disease?

silverbackn

silverbackn

New member
I have ulcerative colitis. I am a 24 year old competitive bodybuilder. I was diagnosed about a year and a half ago. I was put on colazol, 9 pills a day, to keep it under control. I stopped taking it about 3 months ago to see what would happen, my stomach is kind of bothering me now but I don't know if it's just something transient or if it is in fact the colitis causing it. Anybody with any experience? What are you taking? Do you feel like shit at times? What prescribed drugs have worked best? I would love to hear some feedback, I know I'm not the only one.
 
I have crohns disease, i was diagnosed with it in 98 and they said i had it 4 years before that. I used to get the remicade infusion.....that is a godsend for Crohns disease. But at the time i dont have insurance so i cant get it(it costs around 7000 per infusion) I have been on numerous meds since i was diagnosed. I was on prednisone for over a year and my dr finally got me weaned off of it.....Right now im taking 9mg of endocort every day. It seems to be working. It is kind of a steroid but not all the nasty side effects. I have painful days but most are ok......if i dont take my meds for a few days i can tell, and i feel like crap.
Living with Crohns diease sucks but there ARE worse diseases out there. This one isnt curable YET but it is treatable:) i hope u feel good soon and best of luck to u
 
SoKlueles said:
I have crohns disease, i was diagnosed with it in 98 and they said i had it 4 years before that. I used to get the remicade infusion.....that is a godsend for Crohns disease. But at the time i dont have insurance so i cant get it(it costs around 7000 per infusion) I have been on numerous meds since i was diagnosed. I was on prednisone for over a year and my dr finally got me weaned off of it.....Right now im taking 9mg of endocort every day. It seems to be working. It is kind of a steroid but not all the nasty side effects. I have painful days but most are ok......if i dont take my meds for a few days i can tell, and i feel like crap.
Living with Crohns diease sucks but there ARE worse diseases out there. This one isnt curable YET but it is treatable:) i hope u feel good soon and best of luck to u
Click to expand...
Thanks bro! I appreciate it. I was on prednisone for a little while, only at 40 mg's though. It wasnt fixing anything, then he added the colazol and i honestly felt better the next day. I hate being a slave to prescriptions, it is expensive and a pain taking 9 pills a day.
 
um check my gender again:) and yeah i was up to 40 mg of prednisone a day too..i hated it....but ask about the infusion...im telling u, its the best thing
Theres others on the board that have Crohns disease also
I took pentasa too....and asacol but my crohns isnt in my colon.
 
MD's see this as a problem of what drug can i give this patient to make them feel better. this needs to be looked at in a more functional way and thats why i believe there hasn't been much success in treating crohn's. Have you thought about taking a more natural approach? have you had your food allergies tested ever?

As a competitive BBer the last thing you want is to be on prednisone...puts your body in a catabolic state and stores fat around the midsection and face
 
SoKlueles said:
um check my gender again:) and yeah i was up to 40 mg of prednisone a day too..i hated it....but ask about the infusion...im telling u, its the best thing
Theres others on the board that have Crohns disease also
I took pentasa too....and asacol but my crohns isnt in my colon.
Click to expand...
Oops! hehe. I don't have colitis not crohns, they are similar but not the same. Just a different part of the system affected. I wonder if the infusion treatment works for colitis, I need to check into it. Thanks sista!!!!
 
BlondeBombshell27 said:
I have colitis too. I take colazol as well. I don't like taking all those damn pills too. I want to find something better too. I also have IBS really bad too.
Click to expand...
Is colazal all you are taking? Have you had any more flare ups since using it?
 
silverbackn said:
I have ulcerative colitis. I am a 24 year old competitive bodybuilder. I was diagnosed about a year and a half ago. I was put on colazol, 9 pills a day, to keep it under control. I stopped taking it about 3 months ago to see what would happen, my stomach is kind of bothering me now but I don't know if it's just something transient or if it is in fact the colitis causing it. Anybody with any experience? What are you taking? Do you feel like shit at times? What prescribed drugs have worked best? I would love to hear some feedback, I know I'm not the only one.
Click to expand...

I have crohns disease. My weight would bounce from over 220 when I was bloated and loaded up prednisone to the times I would get down to 135 when I was sick. I was in misory from 15 to 25. However, I have been in remission for the last 8 yrs and feel great! I did it from changing my diet, and eliminating the stress I had in my life at that time. (I know dr's say diet isn't important and stress doesn't have much to do with it.)

Since you are a body builder. I assume you are eating 6 to 8 balanced meals a day. This is great. However, if you are taking any oral steroid, caffeine, ephedra, etc...These can cause flare ups.

Good luck
 
awittyusername said:
I have crohns disease. My weight would bounce from over 220 when I was bloated and loaded up prednisone to the times I would get down to 135 when I was sick. I was in misory from 15 to 25. However, I have been in remission for the last 8 yrs and feel great! I did it from changing my diet, and eliminating the stress I had in my life at that time. (I know dr's say diet isn't important and stress doesn't have much to do with it.)

Since you are a body builder. I assume you are eating 6 to 8 balanced meals a day. This is great. However, if you are taking any oral steroid, caffeine, ephedra, etc...These can cause flare ups.

Good luck
Click to expand...
Congratulations on getting your health back, that awesome! I lost 27 pounds over 3 months when I got it. That is very encouraging. Stay after it!
 
I had it, Think I still do, The doc put me on some antibiotics, I had to quit eating hot foods, and raw fruits and vegetables. If you keep a pretty good diet you can ussally keep it in remission. Also buy some anti-diarhea OTC medicine.
 
dfav000 said:
I had it, Think I still do, The doc put me on some antibiotics, I had to quit eating hot foods, and raw fruits and vegetables. If you keep a pretty good diet you can ussally keep it in remission. Also buy some anti-diarhea OTC medicine.
Click to expand...
That is so true about the OTC stuff. I don't know if I could survive without immodium AD, sometimes I take it just in case if I am going somewhere. It works very well for me.
 
dfav000 said:
I had it, Think I still do, The doc put me on some antibiotics, I had to quit eating hot foods, and raw fruits and vegetables. If you keep a pretty good diet you can ussally keep it in remission. Also buy some anti-diarhea OTC medicine.
Click to expand...
the best anti diarrhea meds i have everfound for crohns disease is lomotil. I carry it everywhere I go. If you have insurance, its the cheapest way to go. You can get 60 tiny pills that u can just take without water for 16 bucks. and it only takes 1.
 
I have crohns disease and have had it since i was 14 im now 17 and have been lifting for a year and would like to start bodybuilding. Im on remicade and imuran(azithioprine) and right now ive recently recovred from a major flare up that put me in the hospital and on prednisone. i was wondering if anyone every worked out hard while they were on prednisone because it made me bigger even though cortisone is supposed to deteriorate muscles
 
I have it as well. When I have it under control I am able to do pretty much anything I want athletically. :)

As you know, when it acts up, it makes eating tough which kind of screws up bodybuilding *just a little bit* doesn't it?? :(

While you guys seem to be suffering from the diahrea, my Crohn's actually causes me the total opposite where I get blocked from scar tissue in the intestines. I am awaiting my 2nd surgery (a re-sectiion) which I look forward to because I had one 6 years ago and felt amazing until this scar tissue started acting up.

Good luck to you all and just keep lifting weights... It is the BEST medicine!! :)
 
By the way guys I just thought of a new idea. (Well new to ME anyways--hehe)

I assume a lot of you Crohn's people suffer bouts of anemia after prolonged periods of internal bowel bleeding/ulcerations. The traditional treatment for this is Ferrous Gluconate tabs or iron injections... But what if we were to supplement Dessicated Liver tablets instead?? They are known to boost iron but I am hoping in not as harsh and constipating a way as Ferrous Gluconate.

I will let you know how it goes...
 
I have had ulcerative colitis since 1994.Fortunately it remained localized in the procto-sigmoid lower colon.I found that no oral meds helped so I use cortenema for a few weeks when suffering a flare up.If it gets really out of control I gotta use prednisone for a couple of weeks(maybe once a year or so)I'm a 36 yr old male and I find that when I'm not emotionally stressed the disease seems to calm down.However even in the calm state I still can't wait too long if I need to use the washroom.
 
scorpion1960 said:
I have had ulcerative colitis since 1994.Fortunately it remained localized in the procto-sigmoid lower colon.I found that no oral meds helped so I use cortenema for a few weeks when suffering a flare up.If it gets really out of control I gotta use prednisone for a couple of weeks(maybe once a year or so)I'm a 36 yr old male and I find that when I'm not emotionally stressed the disease seems to calm down.However even in the calm state I still can't wait too long if I need to use the washroom.
Click to expand...
Everyone keeps mentioning stress and it is so true. If you are stressed out it definitely seems to irritate it. I don't have a problem with urgency too much. To be honest, it has NEVER bothered me when I was prepping for a show and eating totally clean. I don't know if it's the clean food, reduced calories, or the fact that my body just gets used to the foods I'm eating but it works for me. I happen to be dieting to work the ALRi booth at the Arnold right now and it hasn't been an issue what so ever.
 
Put it this way....when I'm on vacation for a couple of weeks(down in the Caribbean or Mexico etc)the disease literally goes away.I can eat anything,drink,party etc. and nothing flares up the condition.And once I'm back home everythings fine until some kind of relationship stress or job stress kicks in and things start up again....Some doctors are finally admitting that there is an emotional link which triggers an autoimmune reaction in many diseases.
 
See the problem is that many people focus more on IBS (irritable bowel syndrom) and the crohns and U.C go on forever and the poor patient goes nuts in pain. However both of these issues are quite common and there are many people out there who have it each with their own set of issues and sides. The flare ups suck, and it takes a while to get the correct dose of meds and to tame it. Sorry to hear that you have it silver.
 
scorpion1960 said:
Put it this way....when I'm on vacation for a couple of weeks(down in the Caribbean or Mexico etc)the disease literally goes away.I can eat anything,drink,party etc. and nothing flares up the condition.And once I'm back home everythings fine until some kind of relationship stress or job stress kicks in and things start up again....Some doctors are finally admitting that there is an emotional link which triggers an autoimmune reaction in many diseases.
Click to expand...


This is not the first time I hear this. I've seen the opposite. Some people who can't take a shit, they go to another country and dump a load every day; or going to LA, eating crawfish every day makes them spray walls with shit every day.

If I had to take a shit so frequently, I'd stick a hose in my ass and evacuate it just like if I was peeing. Having a pipe in yo ass all day long is a pain the "ass" though...and makes you feel like "shit"

:worried:
 
Hey! I just now saw this section of the site. I have crohns since i was 11 and now i am 23. Just had my 2nd surgery and only on imuran now. Been throught the prednisone and all that other crap. Dont know if any of yall have tried any alternative medicine but when i take Equipose and test my crohns and inflmation goes away. I substitute it for prednisone. The are both steroids and reduce inflamtation but work in differant ways as Equipose and Test are anabolic and prednisone is catabolic. Any of yall try AAS and know if they work for you?
 
Major Payne said:
I have crohns disease and have had it since i was 14 im now 17 and have been lifting for a year and would like to start bodybuilding. Im on remicade and imuran(azithioprine) and right now ive recently recovred from a major flare up that put me in the hospital and on prednisone. i was wondering if anyone every worked out hard while they were on prednisone because it made me bigger even though cortisone is supposed to deteriorate muscles
Click to expand...


Maybe it made you bigger becaseu of your increased appetite you ate more so you built more muscles. Just an idea. I use to counter my prednisone with Anabolic steroids to counter the catabolic effect
 
I had surgery in august, they removed part of my ilieum and part of my large intestines and colon. wasnt fun, was in the hospital for 7 days and im still having side effects from the surgery ugh
When i was first diagnosed, my Dr told me that everyone with Crohns disease would have to have surgery at least once in their life

i hope this was my once
I had been wanting a boob job and stuff, after that surgery I never want any kind of surgery again.
 
SoKlueles said:
I had surgery in august, they removed part of my ilieum and part of my large intestines and colon. wasnt fun, was in the hospital for 7 days and im still having side effects from the surgery ugh
When i was first diagnosed, my Dr told me that everyone with Crohns disease would have to have surgery at least once in their life

i hope this was my once
I had been wanting a boob job and stuff, after that surgery I never want any kind of surgery again.
Click to expand...


Yea i hear yea. I had my first surgery for scar tissue 6 years ago. They left a small part in becasue it wasent bad enough and this time they had to take it out which was good casue a tumor was growing on top!! lol Anyways yea i cant get my system to get back to normal or close. always have to go to the B room and it sucks. Boob job will hurt but much easier as you arent using your abdominal muscles like after GI surgery!
 
Ya I noticed that when I'm on a Deca cycle the disease shuts down ...probably due to the steroid suppressing effect as with prednisone.For those of you on prednisone try and avoid test cycles cuz your face will blow up like a balloon.For the time your're on prednisone,try and stick with roids that cause less water retention.
 
scorpion1960 said:
Ya I noticed that when I'm on a Deca-Durabolin - nandrolone decanoate - cycle the disease shuts down ...probably due to the steroid suppressing effect as with prednisone.For those of you on prednisone try and avoid test cycles cuz your face will blow up like a balloon.For the time your're on prednisone,try and stick with steroids that cause less water retention.
Click to expand...


Take an Anti E for the bloat and it will get the excess water out. Yes steroids have anti inflamatory properties much like prednisone. It works!
 
Selfcentor said:
Yea i hear yea. I had my first surgery for scar tissue 6 years ago. They left a small part in becasue it wasent bad enough and this time they had to take it out which was good casue a tumor was growing on top!! lol Anyways yea i cant get my system to get back to normal or close. always have to go to the B room and it sucks. Boob job will hurt but much easier as you arent using your abdominal muscles like after GI surgery!
Click to expand...
you mean even after 6 years your trips to the bathroom are not lessening????
oh crap
 
SoKlueles said:
you mean even after 6 years your trips to the bathroom are not lessening????
oh crap
Click to expand...


After my first surgery i was Real good. I just had my 2nd surgrey 6 weeks ago. They had to remove a really small part of scar tissue so it wasent bad but damn i have to go alot!!
 
Selfcentor said:
After my first surgery i was Real good. I just had my 2nd surgrey 6 weeks ago. They had to remove a really small part of scar tissue so it wasent bad but damn i have to go alot!!
Click to expand...

I am in your boat man...

Had a re-section in 2002 and am awaiting another surgery to remove some scar tissue...

Never knew EQ was so helpful... I will try it out. :)
 
so basically you guys are saying, once i have surgery, there will be scar tissue and i will have to have surgery again?????
holy crap, noone told me the bad parts of it. they just told me I would feel better and no more pain. which i do but the bathroom is still my best friend
holy crap no more surgery!!!
 
SoKlueles said:
so basically you guys are saying, once i have surgery, there will be scar tissue and i will have to have surgery again?????
holy crap, noone told me the bad parts of it. they just told me I would feel better and no more pain. which i do but the bathroom is still my best friend
holy crap no more surgery!!!
Click to expand...


Well maybe not. Mu first surgery they didnt want to cut it out becaseu it was a small piece that wasent very bad yet, BUT they knew in the future (6 years later) it would need to come out. So i was prepared.

And yes Equipose helped me out alot.
 
Just got diagnosed last week with UC but unlike most I get constipated and when I can go, little tiny pellets come out with some blood.
I just started Asacal yesterday. My symtons started in early Dec.
Anyone with UC get constipated? I add extra fiber to my morning coffee and some with water at lunch and dinner.
I may start to eat or drink prunes daily. Any advice I would appreciate.

Thanks!
 
Anthony99 said:
Just got diagnosed last week with UC but unlike most I get constipated and when I can go, little tiny pellets come out with some blood.
I just started Asacal yesterday. My symtons started in early Dec.
Anyone with UC get constipated? I add extra fiber to my morning coffee and some with water at lunch and dinner.
I may start to eat or drink prunes daily. Any advice I would appreciate.

Thanks!
Click to expand...

This may sound rudimentary, but drink about 4 Letres of water/day.
 
I have U.C. diagnosed last year in august. Can't get out of this flare either. Not to sound like a punk but I think my docs suck. Anyway They put me on Asacol It didnt work. Mesaline enemas don't seem to work, then he put me on Predisone and it works but has way too many nasty sides and is only A temp. fix. I'm fed up!
I was 167 last summer solid down to 147 of skin bones and some muscle. I keep eating more but I keep losing weight. I'm guessing I'm not consuming my nutrition and food due to this disease? Malasobortion I beleive it's called. I guess this disease is quite common now so we're not alone wish they would find a cure, but wishing is for fools so I'm trying to make due. I will be trying AAS's this yr. First time ever, I'm desperate lots of ppl swear they may help so it's worth a shot. Plus I would like some muscle back that this disease stole from me. A little backround on me... I'm 34yrs old currently 148 lbs. about 8% body fat. Been working out since 20 off and on due to some injuries. I had shoulder surg 2 1/2 yrs ago. recently had a triple-hernia surg 4 months ago. I know I'm cursed...set-back after set-back but I'm too stubborn to quit!! Been back in the gym about almsot 2 months now. getting stronger but can't gain a pound for the life of me I'm actually slowly biut surely losing prescious pounds because of the UC. So I just wanted to say HI to everyone. Seems like a great web-site with lots of nice knowledge-filled people that are willing to help and talk. :) Thanks
 
New member who found this site by doing a search on AAS and Crohn's Disease. I'm a 43-year old male who has been having major GI problems for 16 years. I've also got Chronic Pancreatitis from a malformed duct, so a lot of times, it's hard to tell whether my flareup in symptoms is from the Crohn's or the Pancreatitis. When I first got sick I was a solid 168, at 5'7" - at my worst, 10 years ago, I was down to a near-death 108!

I had gotten back up to 164 last fall, but have lost 17 pounds since then - and definitely not in a good way. Was on prednisone last fall and then had a major pancreatitis flareup in November. Ain't been right since. Weak, tired, very little appetite, lost a lot of muscle mass and strength.

I was on transdermal testosterone back around '01 and it was - by far - the best I've felt since getting sick. Once my levels got back up to normal, though, they took me off COLD TURKEY. Despite that being the most effective treatment they've used, they refuse to prescribe AAS because it is the new medical witch hunt. The docs have no problem prescribing prednisone or anti-depressants or immuno-suppressants though!

Good to hear that some have also had success using AAS in regards to their IBS. If the docs won't help, guess I've got to look elsewhere.
 
im stunned!! this is the most info ive ever found on my crohns colitis! ive searched the net inside and out and could of swore i tried this place a couple years back ? anyway you guys have just inspired me that i CAN take aas as everytime ive tried it has actualy flared me up,sooooo now thinking its the way im going about it? maybe someone could chime in with some actual mg amounts if thats aloud? at present i just take 150mg test week for hrt im 38next month and never used to have problems with aas until diagnosed with crohns colitis about 7or8years ago! prednisone is the only drug so far that has been able to stop my flares but am lucky in that when im in remission i fairly normal although as has been said i cant gain a pound!! lol have full sixpack that i couldnt achieve when i was a young guy in my teens and twentys lol but so far only primobolan 300mg week and my hrt test 150mg week is all ive dared to try since last time test at even 500mg week made me flare very bad.as most will know theres not much size can be gained on bloody primo at 2-300mg/week! so excited to have found you guys! thanks for great board and people, ozzie.:)
 
Okay, just finished a Beast/hella cycle.....and litterally a week later a bad (Pan UC) flare up starts. I can't go back on because I'm on PCT and I don't want to screw my nattie levels (31yo).
Stress : moving from Illinois to cali this week, then going to VA for 5 months of school.

What I am asking is advice on what to do. I really really hate prednisone, it tears me up and eliminates sleep for me.
I have some epistrong, should I low dose on PCT to stop flare up?
Should I just start Pednisone even though I'm driving cross country and won't be able to sleep?
Is there something I can take that won't destroy my gains from cycle?
I have great medical coverage Uncle Sam's , but I have to move this week... so I can't go the Remicade route right now.

This blows... I'm kinda crashing into A Relapse Depression

V/r BB
Posted with my Droid EO Forum App
 
I'm not sure if this is helpful or not...
As I was reading this thread, it reminded me of a video of a Doctor talking about a whole raw food and its relevance with Crohn's, Diverticulitis and other GI issues.
i was able to find the video..you can forward to the 3:50 mark to hear info relating to this topic...
Lifemax Doctors’ Panel Videos : MyLifemax.net

The food that the Dr is referring to is called Mila. i've taken it for over two yrs and have had great results with it (lowering cholesterol and pain management).

The Mila is sold here... Lifemax | Home

i hope this helps..
 
Thanks
Ended up going to Dr and getting methalpredisolone, suppposedly a weaker version of prednisone with less sides... but sleep has been nill since day one, so I dunno

Posted with my Droid EO Forum App
 
I am a 48 year male and was diagnosed with colitis and chrons when I was 16. I have been on every med they ever made for it. A friend of mine introduce me to Mila a year ago- an organic raw food you mix with a beverage or food that has amazing Omega 3 qualities and others that eliminate inflamation. My colitis has cleared up to my disbelief. I recover from workouts quicker as well. Its the real deal. I just take it with water for the quickest deliver to my body even though its a bit narly that way-after what i have been through the past 30 years I really don't care. Good luck! also under full disclosure I reduce my alcohol comsumption by 50%...and the best place to buy it is on ebay or a local guy that sells it as it a mlm distribution only.
 
SoKlueles said:
I have crohns disease, i was diagnosed with it in 98 and they said i had it 4 years before that. I used to get the remicade infusion.....that is a godsend for Crohns disease. But at the time i dont have insurance so i cant get it(it costs around 7000 per infusion) I have been on numerous meds since i was diagnosed. I was on prednisone for over a year and my dr finally got me weaned off of it.....Right now im taking 9mg of endocort every day. It seems to be working. It is kind of a steroid but not all the nasty side effects. I have painful days but most are ok......if i dont take my meds for a few days i can tell, and i feel like crap.
Living with Crohns diease sucks but there ARE worse diseases out there. This one isnt curable YET but it is treatable:) i hope u feel good soon and best of luck to u
Click to expand...

Thanks you for the post.
 
I have chrons' and colitis was diagnosed be in 98, I'm 45 now. I also did a few shows here and there, I am currently taking 1000 mgs of Pentasa 3 time a day, 6 pill total. Just had a colonoscopy in January and things have not gotten any worse. The Pentasa definitely works for me, I've tried asacol, colozol, predisone, and none of these did shit. I'm also taking Xanax 2 to 4 mgs a day as needed in helps calms my belly. It's hard to make consistent gains with this disease, just take one day at a time. Diet is key.
 
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