Lyme Disease

[blueta2]

I just sent this info to my LLMD, who by the way is one the TOP Lyme dr's in the US and here was her reply

"For anyone new to all this, lumbar puncture (spinal tap) is rarely effective in testing for lyme. It's like fishing. You dip your net into a pond and you may get a fish. Lucky.

However, if you dip your net (the needle) into the pond (fluid in spine) and come up with out a fish (particular bacteria) that does mean that the pond has no fish. It just means your net did not catch any.
there are several lyme researchers who have written, advising against the use of lumbar punctures as a diagnostic tool for lyme as they are simply not an accurate measure.

I don't have the excerpts or links now - I may have them somewhere in my computer, but I've gotta go now. Out of steam"

 

[blueta2]

Here you go, from lyme research

Misdiagnoses can contribute to chronic Lyme disease when doctors subscribe medications for diseases or conditions they believe their patients have, but in fact they do not. This can have disastrous results. For example, the use of cortico-steroids will replicate the spirochetal bacteria that cause Lyme disease. Therefore, steroids are to be avoided where Lyme disease is suspected, and they are contraindicated. Some Lyme-literate doctors believe that steroid use while Lyme bacteria are present will cause chronic Lyme disease. But, ignorant of the possibility of the presence of the Borrelia burgdorferi bacteria, medical doctors have mistakenly prescribed steroids to control inflammation, with calamitous results for their patients.

 

[blueta2]

Here is the guidelines written by Dr Burrascano who is THE top lyme Dr in the world.

This guideline is given to PCP when treating lyme with the consult of an LLMD. This is the Lyme bible.
I hope you print this out and use it.

http://www.lymediseaseassociation.org/drbguide200509.pdf

 

[blueta2]

Summer is here and lyme is rampant. Just a word to all about keeping an eye out for any bites from ticks or any other insect.


Some very informative videos
This one made me cry cause I relate to this one the most. No Dr in my country knows how to treat me nor does my government want to acknolwdge lyme disease.





Darryl Hall (from Hall and Oats) talking about his lyme

 

[blueta2]

Lyme on Good Morning America

 

[blueta2]

wow, this dude says it all

 

[blueta2]

Lyme on CBS


http://www.cbsnews.com/sections/i_video/main500251.shtml?id=2940713n

 

[BBR100]

wow, this dude says it all

Debilitating disease. Physically, mentally and emotionally.
A constant struggle but never stop the fight.

 

[drsketch]

Did you get a tick on you in the woods? Animal bite you?

 

[blueta2]

Did you get a tick on you in the woods? Animal bite you?

I have no idea. I've been not well for over 14 yrs not knowing why.
Lyme is transmitted by ticks, fleas, mosquitos and black flies, so I could have gotten it anywhere.
Most people with lyme have no idea how they got it. Most do not recall any bite