Limes Disease

[yonkers weights]

Does anyone know anything about it? I think I have it. Went to my doc on Friday and he did the blood work. Will not hear back for a couple of days but he started me on the meds anyway. Might of gotten bit by a tick playing golf, he thinks. I don't have bullseye but that could just mean it was weeks ago.

My whole body feels like I have been beaten with a baseball bat. I am fucked!

 

[Raptorex]

hopefully he gave you antibiotics; you should be fine

 

[gonelifting]

I don't think you ever get rid of that, right? My BIL has it and that's what the Dr. told him. He felt weak like you're describing. He goes camping a lot, so he may have gotten it from there.

 

[SpyWizard]

yep. you never get rid of it, hope it comes back negative..

My mom in law had it, but didn't know that she was sick for 3 months, doc can only treat the symptoms now..

early detection is the only real hope..

sorry to be a downer..

 

[binö]

lyme

 

[RottenWillow]

hopefully he gave you antibiotics; you should be fine

No he probably wont be.


I've have Lyme Disease since Jan '06. The primary infection involved is Borrelia Burgdorferi. Secondary is Babesia, which is not a bacteria, but closely related to Malaria and can only be effectively treated by an anti-malarial drug called Mepron. Most people with LD also have at least one or two additional bacteria infections due to the immune system compromise it causes.

Effective treatment almost always requires installation of a Pic line so the patient can administer him/herself IV antibiotics in gram dosages. That usually takes 12-20 weeks. Then usually another 6-12 months of oral antibiotics.

YW you need to visit lyme.org and educate yourself on this disease. The huge majority of docs dont know very much about it. If you do in fact have LD and your doc tries to give you 6-8 weeks of oral antibiotics, you will not get well.

 

[RottenWillow]

yep. you never get rid of it, hope it comes back negative..

My mom in law had it, but didn't know that she was sick for 3 months, doc can only treat the symptoms now..

early detection is the only real hope..

sorry to be a downer..

Yes it can definitely be cured. Your MIL really needs to visit the ILADS website and find herself a Lyme Literate Medical Docter (LLMD) who knows how to treat the disease.

 

[SpyWizard]

Yes it can definitely be cured. Your MIL really needs to visit the ILADS website and find herself a Lyme Literate Medical Docter (LLMD) who knows how to treat the disease.

cured.. yes, but the effects linger..

the elderly are the ones most effected..

Since she lives in rural america access to competent, or specialized medicine is limited..

just like in socialized medicine..

 

[nefertiti]

Does anyone know anything about it? I think I have it. Went to my doc on Friday and he did the blood work. Will not hear back for a couple of days but he started me on the meds anyway. Might of gotten bit by a tick playing golf, he thinks. I don't have bullseye but that could just mean it was weeks ago.

My whole body feels like I have been beaten with a baseball bat. I am fucked!

Got it when I was about ten. My joints were sore as hell, but I was fine in about a month - I don't remember what they gave me but whatever it was, it worked just fine. Sometimes it can be bad but the effects some of you are talking about really are not universal.

 

[RottenWillow]

cured.. yes, but the effects linger..

the elderly are the ones most effected..

Since she lives in rural america access to competent, or specialized medicine is limited..

just like in socialized medicine..

No sir the "effects" indicate a continuing infection. Symtoms do not indicate a autoimmune response as 95% of MD's will tell you, but are in fact a result of continued infection. Please PM me with her state and city and I can use my ILADS login to find the nearest ILADS certified LLMD to her.

 

[RottenWillow]

Got it when I was about ten. My joints were sore as hell, but I was fine in about a month - I don't remember what they gave me but whatever it was, it worked just fine. Sometimes it can be bad but the effects some of you are talking about really are not universal.

Sounds like they ID'ed your infection while you were still in the acute phase, and your immune system was still healthy. Wow you dodged a bullet. That's wonderful.

 

[SpyWizard]

No sir the "effects" indicate a continuing infection. Symtoms do not indicate a autoimmune response as 95% of MD's will tell you, but are in fact a result of continued infection. Please PM me with her state and city and I can use my ILADS login to find the nearest ILADS certified LLMD to her.

many thanks for your assistance

 

[nefertiti]

Sounds like they ID'ed your infection while you were still in the acute phase, and your immune system was still healthy. Wow you dodged a bullet. That's wonderful.

It was within a month of when I got bitten. I even have pictures of the day we think I got bit (I was swimming in a pond in my clothes and my shirt was tied up so my mid section was exposed. Bit on my lower back). I lucked out, probably, because my mother was an RN at one time and she's aways been pretty on top of things with her kids health. How long does the accute stage normally last? I remember being in pretty excrutiating pain and I can't imagine people avoiding treatment feeling that way.

 

[yonkers weights]

Thanks to all of you for your help. Not sure what the pills are called but they are HUGE horse pills. I have to take them for 21 days. Doc said we would talk more when he got the results back this week.

 

[RottenWillow]

It was within a month of when I got bitten. I even have pictures of the day we think I got bit (I was swimming in a pond in my clothes and my shirt was tied up so my mid section was exposed. Bit on my lower back). I lucked out, probably, because my mother was an RN at one time and she's aways been pretty on top of things with her kids health. How long does the accute stage normally last? I remember being in pretty excrutiating pain and I can't imagine people avoiding treatment feeling that way.

Since you were still a child (with a developing immune system) you got sick right after getting bitten, which is actually a VERY good thing. Most healthy adults can resist the bug for a while and got get sick, and often dont even notice the bite mark. By the time they get sick the bacteria has "disseminated". The acute phase in my case lasted about 12 weeks.

It's not that people avoid treatment, it's that without a report of a bite mark from the patient almost no docs even think of doing the Western Blot for Lyme Disease to check for it. I saw about 5 docs in '06, one was even an infection disease specialist, and none of them checked for Lyme. Almost two million new cases of LD occur each year in the lower 48 states and few doctors have stayed current on the LD research, dont know how to ID it, or how to properly treat it. The CDC estimates 90% of LD cases dont get reported as such by docs b/c they dont know what they're seeing. The docs give their patients incorrect diagnoses like Chronic Fatique Syndrone, when what they need is huge doses of antibiotics.

 

[gonelifting]

Since you were still a child (with a developing immune system) you got sick right after getting bitten, which is actually a VERY good thing. Most healthy adults can resist the bug for a while and got get sick, and often dont even notice the bite mark. By the time they get sick the bacteria has "disseminated". The acute phase in my case lasted about 12 weeks.

It's not that people avoid treatment, it's that without a report of a bite mark from the patient almost no docs even think of doing the Western Blot for Lyme Disease to check for it. I saw about 5 docs in '06, one was even an infection disease specialist, and none of them checked for Lyme. Almost two million new cases of LD occur each year in the lower 48 states and few doctors have stayed current on the LD research, dont know how to ID it, or how to properly treat it. The CDC estimates 90% of LD cases dont get reported as such by docs b/c they dont know what they're seeing. The docs give their patients incorrect diagnoses like Chronic Fatique Syndrone, when what they need is huge doses of antibiotics.

Hmmmm, I went to an infectious disease Dr. this year. They took a hundred tests! They must have taken 20 vials of blood from me. Took Lymes disease test too, but that wasn't it. I wonder if they could do false negatives with those tests?

I'll look for a pic of what a LD bite looks like, but just in case... what is it exactly? brb...

They wanted me to go on an IV antibiotic "Right away" for over a month. Maybe 6 weeks of daily IV, because of some kind of infection/bacteria or something that I had. They couldn't find it, so they didn't do anything. lol They just kept taking blood and testing me for shit.... then nothing.. wtf?

blah blah..



Good info RW!

 

[RottenWillow]

Hmmmm, I went to an infectious disease Dr. this year. They took a hundred tests! They must have taken 20 vials of blood from me. Took Lymes disease test too, but that wasn't it. I wonder if they could do false negatives with those tests?

The standard LD western blot test reports a false negative about 60% of the time. Good test huh? If you've recently been infected or have been sick for a long time and are chronic you will almost certainly come back negative since there are little or no antibodies in the body for the infection. (Western blot tests are senstive to antibodies manufactured by the immune system not the virus/bacteria)

The test is so insensitive (inaccurate) that the CDC advizes docs NOT to determine a course of treatment based on negative labwork, but on the reported symtoms.