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Everything changed.

bishonen

New member
Tuesday evening, I bid my parents goodnight, and went to bed.

I woke up Wednesday morning at 3:00 AM. It was just starting to rain. I went to work at my usual time, and came home around 9:00 AM. I thought I'd just missed my mom, which happens every day, since she's out the door by 8:30 AM. I did find it odd that the newspaper was still sitting inside the front door, where she'd have left it. My dad is usually up by then, reading the newspaper in the kitchen.

It barely crossed my mind at the time. I took a shower, caught up on my mail, got dressed, got my bag packed, and prepared to head out to school. But it was raining hard at this point, and the car (van) I drive is a rust bucket (albeit, free for me to drive) and stalls out frequently in the rain. Since I drive down a six lane highway on my way to school (Rt. 50 through Olde Towne Fairfax) I thought it best I ask my dad if I could take his car.

He was still in bed. Okay, I thought, he was probably up playing Diablo II until just before I got up. There's a reason for him to be tired.

When I tried to talk to him, he just looked at me blankly and didn't speak. Okay, I thought, he's probably caught a bug that's taken out his voice for the time-being. He was acting a little strange, but he covered himself when I walked to his door (he was wearing a shirt and underwear) and since my mom usually wakes up with him, I thought she would have already known what was wrong with him. I thought the whole situation odd, so at 11:00 AM, I called her at work. Her answering machine stated she was in the office, but not around at the moment. I left a message to call me back. She'd get it soon.

I was a little concerned, so I went to check back up on my dad. He was still acting strange, but nothing registered as being too out of the ordinary. I asked if there was anything I could do for him, if he was okay, if he needed to go to the hospital, if he needed be to call an ambulance. To the best of my knowledge at the time, he answered negatively to each.

At 11:10 AM, I left a second message on my moms answering machine at work, this one a little more frantic. Something was weird, but she must already have dealt with it before she left for work, and I was running late for school, so she might want to come home during lunch and check up on him.

I ended up taking the van to school. It didn't stall.

My day at school was okay. It was raining hard all afternoon, I ended up with a parking space fairly far away, and was wet during class. I left school sometime around 4:30 PM, and with a few errands on the way home, arrived around 5:15 PM. When I walked in the door, the newspaper was in the same spot as when I left, and there were no messages on our answering machine. I proceeded to shove food in my face, and go about my business.

A short time later, my mom called. She'd gotten up at 7:00 for work and been at meetings all day. She had just heard my messages.

Shit.

At her prompting, I ran upstairs and checked on my dad. He wasn't laying in his bed, he was half-naked, collapsed on the floor, curled in the fetal position, and anxiously stroking the carpet with his free left hand. His stare was mostly blank, and he could not respond to anything I said. Words were exchanged, she left immediately, and a short time later, an ambulance was called.

The 911 operator was helpful and reassuring, and within a few minutes an ambulance and fire truck pulled up in front of our house. As a funny aside, we live in a big loop of a neighborhood, and they ended up taking the long way around the loop. So much for maps!

I was outside waiting for them, and ushered them inside and to my parents bedroom. There were quite a few of them, probably six to eight. My mother and I sat and watched as they cut off his shirt and started taking his vital signs. Blood sugar was normal, blood pressure was within safe bounds. But he couldn't move, speak, or understand.

My father had suffered a massive stroke.

At 53 years old, and in pretty great shape. Sometime Tuesday evening, something got stuck in his brain.

The paramedics wrapped up, loaded him up on a stretcher, and took him to the ambulance. After a delay, they rode to the hospital cold, while my mother and I followed.

We spent the night in the emergency room next to my father, who couldn't even recognize us, and could barely keep his eyes open. Our only break was when I took my mom out to eat at IHOP (her choice) since she hadn't had anything to eat all day. We ended up at home around 11:30, after calling a ton of people from the hospital.

Needless to say, I had things more important than work to do the next day, and I sure as hell wasn't going in on three hours of sleep. It was when I called in that I realized how much it sucks to be a teenager - the response to "I've had a major family emergency, I can't make it in today" was "Well, will you be in tomorrow?"

I was so glad they cared so much.

I spent most of Thursday, save for a three hour break to go to school, at the hospital with my mom.

He has a little bit of understanding in his eyes, and it's possible he recognized my mother and me. He can respond to commands from the doctors. He has some control over his right side. Some. It's mostly useless.

He has Broca's aphasia due to the swelling, and may never speak again. Only time will tell what parts of himself he regains. Even the most optimistic opinion is that he'll never be his former self.

I don't like my dad, and we haven't ever gotten along with one another. But what's happened is something I would never wish on anyone.

And there's nothing we can do. There's no treatment for strokes, outside of time for the body to recover. We just sit and let him know we're there.

I'm now the man of the house. I've never shopped for groceries before, but I'm going to have to start. I'm going to have to start dealing with the cars, and home improvement projects, and clipping coupons, and cleaning, and the rest of the things my mom can't do working 50 hour weeks. That's a lot of responsibility for me. I'm only 18.

My diet has been shot to shit. I had a pretty specific bulking diet planned out, and now I can't even remember to take my flax oil. I'm eating whatever I have around, lots of sugary crap, and a ton of carbs.

And this is just the beginning. The best case scenario is that we have to sell our house and move, since insurance won't pay for long-term care and physical therapy. If you've know anything about of have dealt with medicaid, you know the severity of the worst case scenario. It's not pleasant to think about.

I seriously don't know what to do. I have no one to talk to, and nowhere to go.

As soon as I'm done typing this, I'm heading back to the hospital to check on my mom, and see my dad. He was having an MRI done when I went this morning.

Goodbye, all.
 
I wish you and your family the best. Don't worry too much about your diet being shot to shit...that's not important compared to what you are faced with now. Don't worry too much about all those things you have to take care of, I'm sure your mother is more than capable of instructing you on how to shop for groceries or clip coupons or take care of the car. I don't know what your mother is like, but I hope she doesn't expect you to shoulder everything on your own. You're 18, you're not a child anymore, you can do this. Take care!!
 
Wow...I'm so very sorry to hear about that. I will be thinking of you and your family and I'm sure that you all will make it through this. It is going to be a long, hard struggle...and don't get too down on yourself. Try to keep yourself busy with things that make you happy...and deal with each experience with your dad accordingly. I have faith that you and your mom will be okay.

I really don't know what else to say...but you are in my thoughts and prayers.
 
Reminds me I am truely blessed to be in good health.
Best wishes to you.. You can do this. It's hard, but you can do it.

At some point you and your mother need to have a talk with the hospital social worker about your states provisions for at home health care.
Most every state has some form of "at home" assistance.
When I dad got ill , state workers came out and assessed the bathroom and had handrails, special commode, bathtub installed.
They sent a nurse to the house every day for meds and monitoring
They provided an assistant that helped around the house, spong baths,changing his clothes,
There's a lot of assistance available, but it takes time to apply, get approved, get the ball rolling.
Ask the doctor, or hospital social worker, they'll know what I'm talking about and can get you started.
 
LET ME TELL YA SOMETHING BRO I HAD ALMOST THE SAME THING HAPPEN TO ME BUT MY FATHER DIED OF A MASSIVE HEARTATTACK WHEN WE WERE DEEPSEA FISHING IN THE MIDDLE OF THE SAN FRAN BAY I WAS HOLDING HIM AS SOME OF THE PEOPLE WE WERE WITH GAVE HIM CPR. THIS IS REALLY HARD FOR ME TO TALK ABOUT SO BARE WITH ME IF THINGS DON'T MAKE THAT MUCH SENSE. HE DIED IN MY ARMS ON THAT BOAT WHEN I WAS 17YRS OLD I HAD ALREADY GRADUATED HIGHSCHOOL, BUT I HAD TO QUIT COLLEGE AND WORK FULLTIME AS MY MOM HAD A NERVOUS BREAKDOWN AND SHE WENT BANKRUPT I WAS THE ONLY MONEY COMING IN FOR A LITTLE WHILE I HAD TO START SELLING DRUGS TO MAKE ENDS MEET. IT MADE ME REAL HARD AND HATEFUL MY DAD WAS EVERYTHING TO ME THE CROWD I STARTED RUNNING AROUND WITH ARE LIKE MY FAMILY STILL BUT WE WERE A BUNCH OF THUGS BUT I HAD NO CHOICE. I DID DO A SHOW 6 WEEKS AFTER HIS DEATH IT KEPT MY MIND FOCUSED ON SOMETHING BESIDES MY PROBLEMS I DID REAL WELL. WELL LET ME MAKE THIS SHORT I KNOW EXACTLY WHAT YOU ARE GOING THROUGH JUST BE THANKFUL YOU FATHER IS STILL WITH YOU AND START REPAIRING YOU RELATIONSHIP WITH HIM NOW BECAUSE THIS SHOWS YOU HE WILL NOT ALWAYS BE THERE AND I GARUNTEE HE WILL BE MUCH MORE OPEN TO HAVEING A RELATIONSHIP WITH YOU KNOW WHEN HE STARTS TO RECOVER AND HE WILL RECOVER MAYBE NOT FULLY BUT HE WILL. JUST SHOWS YOU WHATS IMPORTANT. YOU CAN HANDLE THIS AND IF YOU NEED SOMEONE TO TALK TO IM HERE FOR YA JUST PM ME AND WE CAN SHARE STORIES. GOOD LUCK AND GOD BLESS
STAY UP PLAYA
WIDELAT
 
wow, i'm so sorry for your troubles. you will be in my thoughts and prayers.

that was solid advice from john above. get your mom to talk to a social worker asap for assistance. the hospital should be able to point you in the right direction to get assistance.
 
I live in the Peninsula area...I know our state offers Medicaid and other programs.

I know that some hospitals offer - though they do not "advertise" services as Hill-Burton providers. The Hill-Burton Act is too involved to explain here, but in a nutshell hospitals who accepted government money for certain things are required to provide a certain amount of free and greatly reduced (price wise, not reduced service) care every year. However, they are not required to advertise this fact. Contact hospital administration and maybe this can alleviate some financial strain. Definitely check into home care, too.

I've never been in your position and my goodness you're so young!! :( Keep strong! Prayers go out to you and your family.
 
Two very sad stories.:(

Bish...like the others have said...it's time to stay strong and focused. What's happening is tragic but it's your turn to grow up and I don't mean that in a bad way. My deepest sympathy for you and your family. I hope the best for your father. Things happen for a reason and it's just a matter of recognizing them. Make peace with your father and good things will happen. Don't let him die without him knowing that you love him. Stay strong for your mother. My prayers are with you and your family.

WIDELAT.....your story is touching to say the least. I know that must have been awful but your father knew that he meant the world to you. I'm sure you have many fond memories of your father. I don't look down on you for the things you have done. You had to do what you had to do! My prayers are with you also.

I'm dealing with my own crisis with my father as he has just been diagnosed with Ahlzheimer's Disease. Very sad but will have to make the best of a bad situation. He's my best friend in the world, it's just sad that this disease takes everything from you and leaves a shell of a once proud person. Give you an example as to the latest incident that has happened with my father......My nephew is staying with my parents and he has to get up at 5:45am every morning to get ready for college. My father woke him up at 1:45 am. He thought he was doing the right thing. Yesterday, my nephew asked him to move his car out of the way because it was blocking his car in the driveway. My father got in, started the car but couldn't figure out how to put the car in reverse. Sad!:(
 
Hey, there is hope! Never give up hope!They can't reverse the damage from this stroke..but you can prevent another perhaps.

My dad had two major strokes last year. We did not think he'd survive either one after. He pulled thru! He can't talk very well but we still have him! Although not for long.....He was just diagnosed with bladder cancer.

I feel your pain..More than you know!
 
My prayers go out to all of you who have had such troubles. I have been through a similar situation and my advice is just keep your head up and if nothing else, tkae from the events the knowledge that every day could be your last and regardless of muscle mass or body-fat, the ability to awake breathing from day to day is somthing much more special

Good luck.
 
I just got home from the hospital. I've been bawling my eyes out.

Evidently his left carotid artery was blocked. Like completely, 100% blocked. Chances are he'll never recover enough to even take care of himself, but you never know with strokes. I'm hoping for the best.

Shopping and cars and trash and emptying the litter boxes, all this and more is what he did. He was laid off from his job a while ago, and he took over all that kind of stuff. My mom hasn't shopped in forever, and I don't think she'd know how to change the oil in a car if it would save her life. :)

It all really just depends on how much he recovers. Right now he can't even swallow. Unless he improves a lot - and right now, he's basically comatose - home care isn't an option.

My mom did talk to the social worker at the hospital. They went over her options, and looked at medicare, where the state takes care of him. That's the worst case scenario. They only let you keep $1,400 a month, plus $89,000 in assets. Your house being an asset. I seriously hope it doesn't come to that, because $1,400 would barely cover rent around here.

grlpwrd - I'll definitely ask about the Hill-Burton act when I'm there tomorrow, thank you.

He was a very bright and intelligent man, if not a little awkward. This is his worst nightmare, on par with Alzheimer. I only hope he recovers enough to make his own decision.

Thank you everyone.
 
My heart goes out to you. These are two very sad stories that really make you appreciate life. You never know what another day will bring so cherish those in your life everyday. I'm so very sorry for you and will prey that god will see you through.

peace
 
Thank you for sharing your stories... I know there isn't anything that I could say to make it better, but it is helping me to be patient and TRY not to act out of vengence.

I can't be specific, but I have been sent many clues as to what I should ask for from the court in relation to my children's father. I am in a position now where I could pretty much leave and take the kids with me IF THAT IS WHAT I WANTED... but that isn't right and I won't.

Yea, he is a MAJOR PRICK right now, but even though he has taken all of my charity towards him and is trying to use it against me, I won't stop being that way. No matter what, He is STILL thier father. It isn't for me to even TRY to take that regardless of how badly he if fucking up because he is too blinded by hate.

Thank you...

It is helping me to realize how important MY BEHAVIOR will be in the next few weeks.

I wish you all peace and strength... I can't imagine what it is like for you guys, to be forced to become men at such a young age.
 
Sorry about that. My dad is in the late stages of Parkinson's disease. He hallucinates. My mother told me that he was in the kitchen carrying on a conversation with my Aunt who died about 2 years ago. Kind of eerie.
 
Dude, my g/f has an anoxic brain injury. Which is exactly what happens when someone has a stroke.

She was in a coma for 3-4 weeks and when she woke had to re-learn everything from scratch. she couldn't swallow or talk either.

Believe me when I say that he will improve. I have been studying this for over a year now and also have personal experience which is on an ongoing basis.

There are some good websites and message boards dealing with this subject. Do a search under anoxic brain injuries or head injuries and you will find tons of valuable info.

Good luck dude and I wish your Dad well.
 
wow... There are more important things in life than a bulking diet right now. bodybuilding, i am sure, is the least of your worries.

on a side note, though, you are one hell of a writer for 18 years old. you will do wonderful in school. you will still have a wonderful life. you are to smart not to.
 
After re-reading your first post it seems you father is not as incapacitated as my g/f was last May. We spent weeks wondering whether she would live or die due to swelling in he brain. She was completely unaware of reality when she woke from her coma.

It has only been 15 months and she has gone from being totally incapacitated to running her own business.

I had all the same questions and fears last year and, quite frankly, never expected things to turn out as well as they have. Life will never be "normal" for us again, but improvements continue to happen.

Yes, TIME is the only thing which can heal injuries to the brain. It's pretty amazing how little we actually know about the inner-workings of the human brain. I went from expecting the worst to having a wonderful life with my soon to be wife.

The best thing you can do is to give your father as much mental stimulation as possible. Spending time with him and speaking with him helps greatly. You could also bring in radio or cd player for him to be able to hear songs he likes or recognizes. The more stimulation one receives the better the chances of recovery, so they say.

Best of luck.
 
I'm at the hospital every day now, for at least an hour. He sleeps most of the time, so it gets pretty boring.

We've been slowly bringing in stuff to stimulate him. He's covered in a very bright hand-knit afghan (my grandmother knit it) and there's a picture of him and I skiing which he always seemed to like sitting on a counter where he can see it.

Though we're not sure if he can see very well.

The doctors are pretty certain that at the very least, he'll never speak again. Time to start learning sign language. I know a few people who can teach me.

I'll ask tomorrow if we can bring in a CD player for him, though I'm not sure we'll be able to. He's in the CCU (critical care unit) right now, and will be for the foreseeable future. But like I said, I'll ask.

On a brighter note, he's smiled a few times now. Once when I cracked a joke about how he "better get well, because I don't want to have to shop!" and once today. My aunt flew in from Boston, he smiled at her.

But it might just be wishful thinking.

I'll try to keep things updated. Thank you for all the support.
 
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