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That's gotta be such a helpless sensation
hopefully they can treat it quickly. How is she taking afterwards?
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kiddo had another seizure today
- Thread starter cindylou
- Start date
That's gotta be such a helpless sensation
hopefully they can treat it quickly. How is she taking afterwards?She doesn't remember them at all. She has what starts as complex partial seizures which then generalizes to the whole brain. They start in her temporal lobe. It's interesting to read about. I guess they start with an aura but I don't know what hers is she hasn't communicated anything to me. I know that she knew the last one was coming you could tell she tried to get out of bed to come get me before it generalized into the tonic clonic kind. She was hanging off the foot of the bed when I found her.
Poor thing.
Holy crap, Cindy I'm sorry! I'm off this board so much I had no idea. Nothing is worse than having a child with a health problem, and I honestly can't imagine seeing your kid have a seizure.
You know there are assistance dogs that can tell when a seizure is coming on?
Another thing you may want to look into is a ketogenic diet. It was originally developed for medically resistant epileptic children.
You know there are assistance dogs that can tell when a seizure is coming on?
Another thing you may want to look into is a ketogenic diet. It was originally developed for medically resistant epileptic children.
Aplopez8
Pro Bodybuilder
I noticed a lot of times when a patient is going to have a seizure if you look at the cardiac monitor you'll notice a change in rhythm i know that's not to help for since you don't have a cardiac monitor but little pulse ox show the change in heart rate not sure this will be helpful but it won't hurt to know
Aplopez8
Pro Bodybuilder
I noticed a lot of times when a patient is going to have a seizure if you look at the cardiac monitor you'll notice a change in rhythm i know that's not to help for since you don't have a cardiac monitor but little pulse ox show the change in heart rate not sure this will be helpful but it won't hurt to know
It sucks. I just found out a week ago it was something that wasn't going to stop, and I understand if people aren't rushing to read this thread. It's a depressing topic. I just haven't had the desire to post about it on FB.
I have looked into the Keto diet, as much as I have been able to in the past week. I've been hesitant to put her on the diet, just because it seems so difficult for a little kid to adhere to but I may have to go that route. I wish I knew what started all this.
She fell and hit her head. Supposably, it was a minor bump on the head. She didn't even have a bump from it though. No goose egg or anything. But now the seizures. Now she has this scarring in her temporal lobe. I don't really understand whats happening. Makes me think maybe it wasn't such a minor bump on the head.
I can't get her EEG results I've called so many times and people say they'll call me back but they never do. The wait times are unacceptable to be seen by a specialist and I still haven't had anyone really communicate what exactly she has or what it means. I am so frustrated with this whole process.
