Life Changing Diagnosis

[badslinky]

Well my problem started here: http://www.elitefitness.com/forum/showthread.php?t=475489

Three days ago I went to go see a neurologist for a muscle biopsy and an MRI and xray and stuff. My doc referred me to him after I had been having repeated rhabdmyolysis with cpk as high 40,000, muscle twitching and cramping as well as spasms. So he rulled out virus, enzyme def,inflamatory disorder, other drug induced thing which could cause these symptoms leaving nurological disorder of some sort being an option. So I go in to see the nero today and he tells me I may have lou gerhigs <sp> disease and there is no way to diagnosis it 100%through tests until the symptoms progress. I dont know how to cope with this. prognosis is horrible. this is insaine. I dont have it 100% yet but they wouldnt of told me this today if they didnt think this was the case. I dont know what Im gonna do.

 

[ck2006]

Well my problem started here: http://www.elitefitness.com/forum/showthread.php?t=475489

Three days ago I went to go see a neurologist for a muscle biopsy and an MRI and xray and stuff. My doc referred me to him after I had been having repeated rhabdmyolysis with cpk as high 40,000, muscle twitching and cramping as well as spasms. So he rulled out virus, enzyme, statin or other drug induced thing which could cause these symptoms leaving nurological disorder of some sort being an option. So I go in to see the nero today and he tells me I may have lou gerhigs <sp> disease and there is no way to diagnosis it 100%through tests until the symptoms progress. I dont know how to cope with this. prognosis is horrible. this is insaine. I dont have it 100% yet but they wouldnt of told me this today if they didnt think this was the case. I dont know what Im gonna do.

I am so sorry, best advice I could give would be to either get a 2nd opinion as well research to see what is being done for the disease and what you can do.
Again, I am so very sorry.

 

[thisforumrots]

Hey bud...don't panic or anything wait till the're sure and as stated..GET ANOTHER OPINION
good luck, my prayers will be with you

 

[badslinky]

Thanks for the support. Im not looking for pity. i dunno I just has to write this out for some reason. Im having a massive anxiety right now. oh god.

 

[Gymgurl]

DO NOT PANIC....calm down....You don't know yet and they are wrong or jump the gun and it is not what they think..I'm praying for you and that you can find some peace until you have a answer


GG

 

[chewyxrage]

Hmm I remember your other thread. Are those symptoms continuing? Black urine, etc?

Good luck man. You should go talk to somebody like a counsler, it will help you think through it.

 

[badslinky]

Ya still, but im going in for dialysis, got have the shit put in my arm tuesday. Ive decided that I would rather live life they way I want, being active, lifting as long as I can, fuck my kidneys, Im gonna have fun, especially with such a shitty prognosis. Im going to see another neuro next week.

 

[guest username]

Ya still, but im going in for dialysis, got have the shit put in my arm tuesday. Ive decided that I would rather live life they way I want, being active, lifting as long as I can, fuck my kidneys, Im gonna have fun, especially with such a shitty prognosis. Im going to see another neuro next week.

Your rhabdo caused renal failure? I'm sorry. I was wondering what happened to you since I never heard any more in that thread.

To be honest, I've never heard of Lou Gehrig's disease causing rhabdo. It can cause muscle twisting, muscle wasting, weakness, and paralysis, but I've yet to read anything about it causing rhabdo. Perhaps I'm wrong though.

Please keep us informed. I hope everything turns out ok! I also agree with the previous poster: get a second opinion!

 

[badslinky]

Because my doc could not figure it out I finally went to a neuro. Since I have sever fatigue in my arms and my great grandmother had it this is suspected cause of my muscle strength and twitching. as far as the rhabdo I dont know if they are related but it spured all these other tests to be done.

 

[badslinky]

for a while they thought it may be thyroid-related muscle wasting but that was quickly ruled out.