Visited this site for the first time in 2 years and saw this thread.
My friends 3 year old started having seizures all of a sudden. The kid would just fall flat on his face. It got more and more frequent, eventually more than every day. He had to wear a bike helmet all day.
Mom was a wreck. I would see her, and see the tired and scared look in her eyes. It was very sad.
They put the boy on medicine but it made the poor kid a zombie, and didn't stop the seizures. I don't what the medicine was.
Then they discovered high CBD marijuana and CBD oil. Started giving the kid CBD oil and the seizures stopped almost immediately.
It was like a miracle and I don't really know how else to describe what a blessing and a relief it was for this family.
My wife just told me that now the kid doesn't take it anymore. He was on it maybe 1.5 years or so. He seems to be cured. Dad was growing high CBD plants for while. I am in Colorado, so it is a much simpler matter to find and try this.
I can imagine what you are going through cindylou, and hope you find a solution soon. You should google "CBD oil for seizures."
I'm not planning on becoming a regular around here like I used to be, but if you want me to find out more specifics about this family let me know, and I will find out all I can. I will check back in here for the next few days.
Good Luck!