Thanks guys
Two years...wow....isn't it just incredible? I seem to remember reading that drug/drink dreams are common around anniversaries come to think of it.
We feel incredible with him at home. He has a new heart, and a new life. He was dying in front of me before, I felt so helpless...it was so scary. It was a relief to have him in the hospital and safer than home at the time.
Now we have different challenges- the main one being he has no immune system now from all the anti-rejection drugs. He is on about 1600 dollars worth of drugs a month. One drug, cyclosporine, is 800 on its own a month. That one is completely covered by the Ontario government. The rest my insurance covers 80 % thank God, so we only end up paying 150/month in the end. not too bad.
But after six months of recovery from the transplant his sternum will have healed up completely from where they cracked him open, he might be able to retrain and get a job, work out again, get out of the house more, live his life without all the symptoms he had before, which were unmanageable. I do not recommend heart failure to anyone!!! It sucks so much. Hard to watch someone you love go through that, and know they don't have long to live.
But now he might have a longer life, such a precious gift to me.
On a personal level, I am worn out, but grateful and happy. It can only go up from here I think.
Tell someone you love them today, life, and health, is such a gift.
A New Beginning
Support group for EF members recovering from addictions and/or disorders.